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This weekend I posted a link to an article by a Dr. Duane Graveline, regarding the possibility that statins, particularly Lipitor, might cause ALS (Lou Gehrig's Disease) or something virtually indistinguishable from it. This possibility is truly terrifying, considering how many people are on statins in this country, and how they're being pushed now even for children, for people for whom high total cholesterol is not a potential risk factor for heart disease (a group that includes women of child-bearing age and women over 65 -- ie, the vast majority of women), and even for people who do not have high cholesterol. I swear, we're moving towards The Powers That Be putting this stuff in the water supply.
So I did a google on the subject of statins and ALS. Turns out Dr. Graveline is not alone. Here are just a few of the articles I turned up:
This one is from The People's Pharmacy site, which led me to do a pubmed search that turned up this World Health Organization study, and this study regarding the effects of reduced levels of CoQ10 on neuromuscular issues. Statins dramatically reduce CoQ10.
By the way, CoQ10 is needed for a healthy heart. Ironic, no?
Please, eat low carb, avoid omega-6 fats, take your fish oils, take some niacin, but avoid statins. They're getting scarier all the time.
ALS and the drug Liptor
My dad was diagnosed with ALS in 1999. He was in general good health, but things began to happen with him at 63 his body began to go down, he had been on the drug liptor for a few years. He would tell my mother that his legs bothered him alot of the time. My mother and I think that the liptor that my dad took caused him to get ALS. Doctors just blew it off.
My husband also took liptor for many months his problem was so bad that every muscle and joint in his body hurt him so bad. He did come off the drug, but to this day he has had problems with his legs. I am not so sure that this was an effect from the drug liptor.
I hope that some research will look into this matter as there are so many people on this medication. If anyone knows if there is any research please let me know. I would appreciate commets
Hello, my name is Brett curry
Hello, my name is Brett curry I am a 17 year old student at West Chester University in Pennsylvania. My father passed away 3 weeks ago from ALS. Throughout his life my father was the quintessence of fitness. He worked for the City of Philadelphia Department of Parks and Recreation, a job that kept him constantly active. Over the years there have been various articles written about my father and his incredible impact on the communities where he worked. This only increased our shock when my father was diagnosed with ALS only 1 year ago. My family has always had a history of high cholesterol. No more than one month after my father was put on the stating drug, Lipitor, did he begin to lose mobility in his right calf. He was then diagnosed with ALS. I am doing a research paper on the connections between stating drugs and ALS. I was wondering if you or anyone who is well backgrounder in this area could email me with information. My email address is BrettCurry92@aim.com
"No" is such a useful word....
A similar experience I had was with my previous GP. At the time I'd recently been diagnosed with diabetes (after I had insisted on getting the Glucose Tolerance Test), and he wanted to prescribe me blood pressure lowering meds because they were standard treatment for diabetics - even though he had just taken my blood pressure and it was normal! I know that low blood pressure is at least as damaging as high, so I told him that even if he wrote the prescription, I would not fill it. He was NOT happy when I told him that...and he wasn't my GP for much longer. BTW, I double-checked with the Joslin Centre site, and confirmed there that BP meds are indicated IF the person has high BP.
This illustrates another of the problems one can encounter with some GP's - blind adherence to a protocol without taking into account the patient's individual circumstances.
OMG Why am I not surprised?
I was floored to read these two entries about statins - I have long thought they were evil, poisonous and that Big Pharma would not be happy until we are ALL on them.
I will spare you the conspiracy theory stuff, but let's put it this way. Despite what the government *says*, there are way too many of us to collect Social Security and if we are getting smart about cigarettes (a great way to not live long enough to collect), well there is always another way. Doctors are telling patients that they will drop if they don't do something about their cholesterol, and a lot of people have obviously been scared into taking these evil things. Even I was pressured into taking Lipitor for a grand total of 6 weeks, about10-ish years ago. I started having leg cramps, and promptly flushed the pills. Cramps went away. Hope my mitochondria are still intact. I will never take statins again. Tip for those trying to get their doc to get off their back about it: if you tell them you are allergic to a medicine, they have to document that and would not in their right minds try to get you to take it again. They will ask you what reaction you had, to see if you are really allergic. Cramps and such don't count. Allergic reaction is itching (preferably all over), hives (welts), redness, throat swelling/difficulty breathing, that kind of stuff. Within a short time period of taking the med. Don't go too overboard, or they will be looking for ER records, LOL. But telling them you had to pop a couple Benadryl to get the itching etc to go away will do the trick. The only caveat I have is, be sure you really want that on your medical record. I am allergic to all statins and also to all platelet aggregate inhibitors (Plavix and all their friends). Statins and Plavix et al are the current darlings that docs seem to want to put everyone on. I have never taken Plavix. I have, however, seen the damage it can do up close. That is a whole other story, LOL.
Don't drink the kool-aid! Just my $.02.
Say You're Allergic
Well, or just say no. No, I won't take statins. No, I've done my research, and I'm unconcerned about total cholesterol. No, with my HDL so high and my trigs so low it's not a problem, and if you don't know that, you should. No, high TC has never been demonstrated to be a risk factor in women. No, it's my body, you can't make me take them, and if you don't shut up about it I'll find another doctor. No, no, no, no, no.
Doctors work for you, never forget it.
My doctor has never suggested statins for me, but she knows that if she ever wants to stop being my doctor, that's the ticket.
Not that simple
As a doctor myself, I'm familiar with the medico-legal aspects of treating patients. If a patient is not compliant with a treatment that you firmly believe (as many doctors do about statins) is life-saving, then it's possible you'll find yourself in a position for being sued if there is a bad outcome. Some doctors worry excessively about their responsibility to convince patients to comply with what is considered standard and good medical care, and will use scare tactics as a last (or maybe even a first) resort. That's why it's so important to find a doc who doesn't feel omnipotently responsible for their patients, who presents their opinion but is open to a treatment that is respectful of the patient's wishes. It can be a very simple matter to handle, really. All you have to do is chart "Treatment x recommended to patient, based on x, y, and z. Patient declines treatment".
Lipitor and profound muscle weakness
I have had 3 separate episodes of serious muscle weakening due to statins. Why 3? Call me a slow learner. The first time, I was also taking clonidine which my GP assured me was the reason for my sudden extreme fatigue/weakness. I could walk no more than a couple dozen yards without stopping to rest. I stopped taking both medications soon after for unrelated reasons and regained my strength. A couple of years later another MD put me on a statin. I had to stop going to malls or any commercial building with large sq footage. I could not step out of my auto. I could not walk up 3 steps without help. I considered using a cane. I actually did use an electric wheelchair in a large market once. I figured out that my extreme weakness was a side effect.. alone. No MD helped, though he helpfully suggested that my symptoms might be due to a bladder infection he diagnosed. I scoured the web until I found the culprit and stopped the statin. It took months to regain my strength. Jump ahead another couple of years. New city, new MD. He expressed alarm about my Lipid Profile and suggested a statin. I related my awful reaction. He didn't blink. This is a new drug. It's better. You'll be fine. Ok.... Long story, short, my experience was the same, but worse. Once again I have partially recovered, but this MD continued to advocate statins. I actually shouted at him, "I will NEVER take another statin as long as I live!!". Fortunately, I remembered a previous experience with Low Carb dieting when all of my labs became normal. Hmmm... Four months ago, I re-started low carb, and once again all my levels are normalizing. It's amazing. Near normal lipid profile, 6.0 A1c, normal blood pressure and 25 pounds lost. I haven't told my doc that low carb is responsible. I just don't want to hear the lecture. He thinks routine low fat dieting and niacin are responsible. *shrug* Why stress him out?
Thanks for reading.
Sharon